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About

My name is Angela and I have been living with a Traumatic Brain Injury since 2012, caused by my camper trailer falling on my head. At the time, I had a thriving salon business, a husband, 2 young children.

This ‘Invisible’ disability went unnoticed and unsupported for 12 months, during which time my marriage began to crumble and I was unable to work.  My friends and children have given me unconditional love and support, but as my daughter told me the other day when discussing how I’m not the easiest person to be with, ’That this is hard for you mom, but you need to remember, I’ve been living with this too’. 

As a parent it’s really hard to hear and it has made me more conscious of the things I do, it has made me step back and think how this has affected both my children, in the past, now and for the future.

This support has been invaluable, but getting the peer support from health professionals, other survivors, extended family members did not happen for me until much later.  Really, I advocated for myself and navigated all the different types of support needed at different stages to put together a plan for myself today which has me adjusting to the ‘New Me’.

There’s so many different facets when you talk about ‘peer support’.

For example, going back to work is hard, you need support of not just supervisors and employers, its the support and understanding of your co-workers because you look fine and you look normal it’s been a couple of months ‘why can’t you just get over it?’

Your work, your capacity to work, will suffer to some extent. So peer support in the workplace is vital.  Other survivors and caregivers who have been through it, get it.  However, if you don’t have that experience and acceptance around you, you feel very alone.

I feel that brain injury would have to be one of the most isolating and lonely illnesses to go through. Because people ‘just don’t get it’ unless it has affected or touched their life.

My Passion

Having suffered a brain injury myself in 2012, I am able to provide peer support to others and assist them in accepting, adapting to and finding fulfilment in their new way of living.

Having support in my mission allows me to manage my own brain injury symptoms, allowing me to rest when needed and attend to my daily health challenges. Some of these symptoms include continuous muscular and nerve pain, fatigue, eyesight and hearing difficulty; as well as cognitive impairment.

I was alarmed at the lack of specialised support for those with brain injuries and after several years of searching for my own solutions, I was inspired to help others.  I love to support survivors,

  • their families,
  • support workers and
  • medical professionals.

SUPPORT & AWARENESS

So many who have a brain injury and the families affected are not provided with specialised support… for quite some time… or at all…

Having lived through this I can help to share my experiences, and that they or their families can expect living with a someone with a brain injury. By educating health care providers and the Disability sector for what is going on for these invididuals, I can help to pave the way for better methods to support them. And highlight the importantce of tailored individual support.

MY LIVED EXPERIENCE

I share the very REAL and RAW everyday experience of living with a Traumatic Brain Injury (with humour where I can :-)) .

This can really help others (survivors, families, support workers, medical staff) UNDERSTAND what a person with a Brain Injury is going through; why I forget appointments (No! I am not rude), why I appear absolutely normal when you first meet me: this really is an ‘Invisible Disability’.

My Goals

My vision is to support those with brain injuries & educate health workers in regional areas (virtual or in person) 

I aim to reach more people who are living with brain injuries in regional Australia, and their families.  Additionally, I can provide support workers, allied health workers, medical professionals and the Disability sector with resources so that they are better educated as to how to manage the effects of brain injury in their communities.

When I had my accident involving a camper trailer and suffered my traumatic brain injury,  it was only 12 months later that I received any diagnosis, care or rehabilitation for the injury. I still struggle with daily challenges with my brain injury but I am determined to raise awareness of this invisible disability.

So many who have a brain injury and the families affected are not provided with specialised support.  Having lived through this, I can help to share my experiences, and what they and their families can expect living with someone with a brain injury. Providing support and resources for an adjustment to a ‘new’ normal of living can be really challenging. I am able to provide others with hope that they can have a fulfilling life as well as talk with truth, honesty and humour about what it’s like to live with a brain injury. The good, the bad, and the sometimes, very ugly.

By educating health care providers and the Disability sector to understand what is going on for these individuals, I can help to pave the way for better methods to support them. Within Indigenous communities, for example, there is zero specialised support for brain injury survivors.  Distributing material to educate these areas is a great start.  Speaking to those living and supporting others in regional areas, either Virtually or in Person will make a huge difference to many communities’ way of life.